What is dementia?

Choose a question to find out more about dementia.

What does it feel like to have dementia?

When a person has dementia, they change over time. These changes are nobody’s fault, and the person can’t stop them from happening. They happen because the person’s brain is not working like it used to. Dementia affects people in different ways so these changes are not the same for everyone.

A person with dementia can often feel confused. This is not a nice feeling to have, and people with dementia can become very sad.

"My Grandpa gets cross easily. I go somewhere else when he is shouting as it hurts my ears."

Emily, 6

Some people with dementia become annoyed or upset very easily. They might not be able to say why.

If they seem angry with you, it can be scary and upsetting. Remember that it’s not your fault. It happens because the person’s brain is not well.

People with dementia can still feel nice feelings. They can feel happy, safe and calm and enjoy doing the things they used to. Some days they may seem more like themselves and these can be really special. Some people with dementia may have lots of good days. Other people might only have them once in a while.

SdB - Alzheimers Research - 205

"When Nanny got dementia I felt very sad but now I don’t feel as sad especially when Nanny holds my hand when I say goodbye and won’t let go!"

Edward, 7


Everyone who has dementia is different. These stories are from different children who know somebody with dementia.