Useful links

Here are some links to useful sources of information, help and support for young people who know a person who is living with dementia.

These links lead out to other web pages and resources that aren’t managed by Alzheimer’s Research UK, so we can’t take any responsibility for what they say. If you have a question about this site or you can’t find what you’re looking for on this page, please contact us and we’ll do what we can to help.

Other online resources for children and teens

The Alzheimer’s Society has information about dementia for teenagers and young adults, and for children, including videos.

Some young people have found it helpful to learn more about dementia by becoming a dementia friend.

The North American Alzheimer’s Association website for children and teenagers has lots of resources, including videos.

The Association for Frontotemporal Degeneration (FTD) is a North American charity that has set up special websites for children and teens who have a parent who is living with FTD.

When Dementia is in the House is a Canadian website with lots of information for teenagers who have a parent with frontotemporal dementia (FTD). Younger children can download an activity book about FTD, which is also available in Welsh.

The Australian Alzheimer’s Society runs a blog with information for young people who have a parent with dementia.

Resources

Books and downloads

The milk’s in the oven is a booklet about dementia for children and young people, written by the Mental Health Foundation.

Ask your local library about Reading Well Books on Prescription for dementia. These include books that provide help and support for people with dementia, carers of people with dementia and anyone who would like to find out more.

Fiction

There are a range of books available to buy that help children and young people to understand dementia. Find more recommendations on this Booktrust reading list or by visiting Pinterest board run by the Alzheimer’s Society.

Information for young carers

The NHS Choices website has practical advice for young carers and information about who can help young carers.

The Children’s Society has information for young carers. They also run services for young carers in different areas of the country.

The Carers Trust has websites for young carers under 18 and for young adult carers aged 16 to 25.

Talk to someone

Childline is a free and confidential helpline for children. You can call 0800 11 anytime, and talk to them about anything, big or small. If you don’t want to talk on the telephone, you can have an online chat or visit their message boards. They won’t tell anyone that you have been in touch.

Information for parents and carers

Alzheimer’s Research UK is the UK’s leading dementia research charity. Our website has information and downloads about the different types of dementia, and the research being done to create a world free from dementia. We run the Dementia Research Infoline if you would like more information about dementia and research.

Your family doctor (GP) is a good person to talk to, and will be able to help you find local sources of support. You can also search by region and county on the Carers UK website.

The NHS Choices website has a guide to dementia, including information about care and support, and living well with dementia.

The Alzheimer’s Society has information for parents, and a downloadable factsheet Explaining dementia to children and young people. They also have information and resources for schools and colleges and run the National Dementia Helpline, which can provide information, support and give you advice about where to find more help.

Young Dementia UK has advice on explaining early onset dementia to children and young people.

Familial Alzheimer’s Disease (FAD) Support Group has advice for parents and carers on supporting young people from families affected by the rare genetic form of Alzheimer’s disease.

Memory Bank offers resources that can be used to help families talk about past times together.


If you have found a resource that you think should be on this page please contact us.